At Giggles & Grace Foundation, our mission is to provide hope, support, and relief to families navigating the challenges of Neurofibromatosis Type 1 (NF1) and other rare conditions. Through financial assistance, care packages, and community resources, we aim to ease the burdens these families face and ensure they feel cared for and empowered.
Our vision is a world where families affected by NF1 and rare conditions have access to the care, resources, and community support they need to thrive. We strive to build a compassionate network of support that brings joy, grace, and resilience to every family we serve.
These guiding principles fuel our efforts to make a meaningful difference in the lives of families affected by NF1 and beyond.
Welcome to the Giggles & Grace Foundation! My name is Mersiha Kuennen, and I’m the proud mother of Caliyah, a beautiful little girl living with Neurofibromatosis Type 1 (NF1). When Caliyah was diagnosed, I quickly realized how challenging it is for families like ours to navigate this journey—especially here in Nevada, where there are no specialized organizations or medical experts dedicated to NF1 and other rare conditions.
Inspired by my daughter’s strength and resilience, I founded the Giggles & Grace Foundation to bridge that gap. Our mission is to support families facing similar challenges by providing resources, care packages, and financial assistance to ease the burden of managing these conditions.
We understand firsthand how overwhelming this path can be, from endless doctor visits to the emotional and financial strain. That’s why we’re here—to bring hope, joy, and grace to families who need it most.
Together, we’re building a compassionate community where no one has to face these struggles alone. Thank you for joining us on this journey. 💙
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