About Us: Supporting Nevada Families with Rare Conditions
Our mission
At the Giggles & Grace Foundation, our mission is to bring joy, compassion, and unwavering support to families affected by NF1 and other rare conditions. Through care packages, financial assistance, and advocacy, we aim to lighten the burden of medical challenges while spreading laughter and hope. Guided by the resilience of children like Caliyah, we foster a community where every family feels empowered, cherished, and embraced with grace.
Our vision
Our vision is a world where families affected by NF1 and rare conditions have access to the care, resources, and community support they need to thrive. We strive to build a compassionate network of support that brings joy, grace, and resilience to every family we serve.
Our core values
- Compassion: We are committed to understanding and addressing the unique needs of families with care and empathy.
- Support: We provide resources and financial aid to help families overcome challenges and feel less alone.
- Empowerment: We empower families with knowledge, tools, and a sense of community to navigate their journey with confidence.
- Integrity: We operate with transparency, accountability, and a steadfast dedication to our mission.
- Joy: We bring light and happiness to families during difficult times, reminding them they are never alone.
These guiding principles fuel our efforts to make a meaningful difference in the lives of families affected by NF1 and beyond.
Our staff & volunteers
Welcome to the Giggles & Grace Foundation! My name is Mersiha Kuennen, and I’m the proud mother of Caliyah, a beautiful little girl living with Neurofibromatosis Type 1 (NF1). When Caliyah was diagnosed, I quickly realized how challenging it is for families like ours to navigate this journey—especially here in Nevada, where there are no specialized organizations or medical experts dedicated to NF1 and other rare conditions.
Inspired by my daughter’s strength and resilience, I founded the Giggles & Grace Foundation to bridge that gap. Our mission is to support families facing similar challenges by providing resources, care packages, and financial assistance to ease the burden of managing these conditions.
We understand firsthand how overwhelming this path can be, from endless doctor visits to the emotional and financial strain. That’s why we’re here—to bring hope, joy, and grace to families who need it most.
Together, we’re building a compassionate community where no one has to face these struggles alone. Thank you for joining us on this journey.
Bring Hope with Your Donation
Make a Difference Today: Your Donation Brings Hope and Smiles. Giggles & Grace Foundation is a registered 501(c)(3) nonprofit, and your contributions are tax-deductible. Thank you for supporting families in need!